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IN MEMORY OF ALLISON LYSIAK!
Allison Lysiak 10/9/2001 - 6/8/2014. We'll sure miss you
This was posted on Facebook - Monday June 9, 2014
"Last night, in the most peaceful way possible. Surrounded by so much love, my sweet baby girl Allison Oddessa Lysiak gently stopped the struggle she had been battling with for the last few years.
She loved so many, affected so many, and she was loved by so many. She went through too much, way too much. Thank you all for being a part of this journey, for praying for her/us, for opening your hearts to her/us, it has been so helpfull, and although extremely difficult it has been so rewarding at times.
Again thank you all!
Here is something I wrote about 2 weeks ago while I watched her sleep so comfortable and beautifull.
"My sweet Allison,
Thank you for gracing my soul with your presence. As I watch you lying in bed, I know that soon you will be ready to release back to the divine light that will wash you clean of all that ailed you, and all that hurt you.
You are finally free to roam, free to stretch.
But what we will still always be connected through is love. No matter where I am (we are) and I feel that warm presence of love and bliss, I will know that I have reconnected to you and I will cherish the moments.
During these last couple years you have shown me so many things I did not know about myself, about your mom, about your brother and sister, about countless other people........but really what amazed me so incredibly much is what I learned about you.
You have brought so much joy to countless people, your divine soul and gentle personality are paralleled with your witty and subtle (yet sometimes blatant) sarcastic sense of humor.....that's my girl!
So as I run my fingers through your hair (only while you are sleeping of course) it is going to be so hard to say/accept/cope with goodbye. Although I am so glad that you will no longer have to deal with the tubes, with the needle pricks, the nausea and all the other unfair/difficult situations you have been through.
So when you are ready, I will make sure you are seen off on your journey in comfort and with dignity, and soaked in all the love in the universe.
-DAD"
This site was not maintained once the Facebook group, "4 the Love of Allie" was created. I recently saw that people still turn to this site, so I will update it as often as I can. This site was not maintained once the Facebook group, "4 the Love of Allie" was created.
For a thorough timeline of events both bad and the good find/follow the Facebook "4 the Love of Allie".
https://www.facebook.com/pages/4-the-Love-of-Allie/531089693583222
Here is a slide show on YouTube that shows Allison's beautiful spirit through the years of her life.
http://youtu.be/ArLLXQBIi8s
Well this is the post that started it all........
"As you may or may not know, Allison Lysiak is an extremely
outgoing and friendly girl. She has always sacrificed for others, and loves to
laugh. I named this page after her illuminating smile that has always seemed to
make time stop whenever it shines.
In late September 2012, Allie started to have some chest pain while we were waiting to have what seems
to be a rather routine cyst removal. Originally it was thought to be just an
ordinarily typical issue, strain on her chest from lugging around a heavy book
bag.
A couple of days went by and it was getting worse and worse. Allison’s
mother Sheri was persistent about having this thoroughly checked into. It was then
discovered that Allie has a bone lesion on her ribs and wanted to urgently have
more tests done.
While we were awaiting to hear the diagnosis they had to perform an emergency surgery to remove the tumor from cutting off function ability and feeling to her legs, and possibly worse. This was a helpless moment of panic that I hope we will never need to revisit. If surgery would not have been completed that night, she likely would not have been able to walk ever again. After surgery by the next morning it was evident that she would have the use of her legs, although flexibility is limited at this time."
Update-
Now since a few years have past, I will not even begin to explain what all Allison has gone through in any detail, but here is a brief breakdown. Allison had lost movement in her arms and legs two times previous to her current condition. She had sixteen surgeries and many other procedures, Radiation, Chemo, and has pretty much been in the hospital for the last eleven months (a week here or there at home totaling only five weeks of the eleven months). She had a tumor resection at her T-spine, C-spine. She had several of her ribs removed. She had instrumentation on her T-spine (which had to be removed and replaced four times). Instrumentation to fuse her C-spine to the occipital (base of her skull). There were a few surgeries due to complications that had to be carried out after her spinal instrumentation began to wear through her skin on her back on multiple times. She had her sternum wired back together after a partial lung lobectomy and a heart and lung tumor resection. She also had a tumor in her lung cryogenically frozen that could not be operated on. She had a portacath, G-J tube, and a trach. There were other procedures, pik-lines, CT scans, Bone Scans, MRI's and countless X-ray's.
During all of this Allison has had the absolute best attitude, and her and her mom, my wife Sheri have gone through virtually every day of this without being separated for a few years. (With the exception of when I would take over on the weekend).
Unfortunately after all of this Allison is now having a relapse at all three tumor sites. She is paralyzed below her neck and is being kept alive by a ventilator at the present. There is nothing that we can do physically to help her other than keep her comfy, caress her, and pour our love into her. We will see that her journey back home is on a road paved with our love and affection, with our memories and tears, with our awe and inspiration of who she was. It will even at times be paved with smiles and laughter as we can recall the wit she had in her demeanor, as well as the sarcastic sense of humor.
Now to sum it up with a section of a song she once loved and I will never forget watching her sway and swing
Alright, already and we'll all float on
Alright, already we'll all float on
Alright, don't worry even if things end up a bit too heavy
We'll all float on, alright